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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Hello all
Just to let you know my GP is referring me to an immunologist. It is because of the global effects of my wonky immune system need some oversight and she thinks this is the best person.
Bernice sees an immunologist over her salicylate benzoate intollerance for her epipen.
but I am told they do specific tests/ work out complex immunity problems too.
Has anyone else seen one of these?
Jenni xxhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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Hi Jenni
No, I don't know anything about this, but hope it means you find some relief from your problems. I didn't realise Bernice had an allergy.
Love Lyn
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Rank: Member
Groups: Registered
Joined: 12/3/2009
Posts: 11
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Hi Jenni
I see an Immunologist and have done for about 10 years. As well as RA I also have Bronciectasis (a lung disease) and a very poor immune system. Because of this I have replacement immunoglobulin every 6 days this regime gives me the best response against infection etc. The immunologist is convinced that all these conditions are related and my RA is worse when my lungs are bad.
I am sure this is not at all related to your problems but interestingly my immunologist used to work in a Rheumatology department. My current RA consultant specialises in immunology and RA.
Davannh
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Hi Jenni,
Yes I have heard of immunologists too and my Aunt (by marriage) who has severe RA also has the treatment Davannah receives. This is at UCL and she has had some good results after failing on absolutely every other med. She's been on trials etc and tried many biologics and this immune replacement treatment seems to be the only thing which was working thus far.
I actually think some rheumys do this too.
Hope it works out VERY well for you.
Love,
Amanda
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Dear Davannah,
Lovely to 'meet' you. I am so sorry to hear of your problems, what a suffering the lung disease must be.
I am glad you are helped by the iummunologist.
Love,
Amanda
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Jenni I too have heard about this treatment at UCL but thought it was a 'one-off' for someone who was extremely ill. However it sounds like it might be used more frequently than I thought. Perhaps it will give a much broader perspective of your conditions from which the physicians can work. Do hope you get an early referral with a positive outcome. Lyn x
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Jenni
Have been thinking of you, pleased to are going to see the immunologist, look forward to hearing how you get on.
Love Julia xx
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Rank: Advanced Member Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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davannh wrote:Hi Jenni
I see an Immunologist and have done for about 10 years. As well as RA I also have Bronciectasis (a lung disease) and a very poor immune system. Because of this I have replacement immunoglobulin every 6 days this regime gives me the best response against infection etc. The immunologist is convinced that all these conditions are related and my RA is worse when my lungs are bad.
I am sure this is not at all related to your problems but interestingly my immunologist used to work in a Rheumatology department. My current RA consultant specialises in immunology and RA.
Davannh Hello Davannh Welcome to our little world, so to speak. Everybody is lovely, and I don t know what I would do without them. I have had RA for about a year and just getting sorted with all the meds. Lots of best wishes, love Julia x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Hi Lovely Jenni Delighted you will be seeing an immunologist BUT has any "joined up care" been sorted yet? Much love Jeanxxxx 11 days and counting....... 
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Ooooh Jenni - this sounds interesting. You sound a bit tentative about the appoinment but maybe the immunologist might be the one to see the bigger picture for all your problems. I do hope so for you Jenni. Take care.
Julie
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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I LOVE that photo of Berny!!!
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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lol yes jean, she is full of pickle, mischief and fluffy blonde whisps! Jenni PS Also has a rather, err, firm opinion on a lot of things and has stropper-a-lotters (cant think where this has come from can you?!) how to be a velvet bulldoser
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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My children are excellent with little ones!
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